Alright, this morning I had my first infusion of intravenous sodium chlorite (IVSC) and red curly hair is beginning to grow out of the palms of my hands and the bottom of my feet. LOL.

Seriously, it's been over 4 hours and I feel fine. My blood pressure rose up slightly, probably because of the salt. There was a very slight burning sensation during the infusion but that's about it. I used 15 mg of sodium chlorite in 300 ml of saline solution. I did not test the PH level. The infusion lasted a little over 1 hour and then I ate a hearty Polish sausage breakfast with eggs and hash browns afterward with some red wine. I felt like smoking a joint but I decided not to push it .

I will have a second infusion later this evening. I don't anticipate any problems. I will do this every day for six days. If I conclude that the experiment is successful, my wife, who suffers from ALS, will probably begin her own IVSC treatment.

This is the beginning of the great, do-it-yourself, IVSC ALS therapy experiment of 2012. It will, hopefully, prove to be just as effective as WF10 or NP001 in stopping the progression of ALS.

Louis

Edit: spelling correction

I'm impressed. This has got to be a unique moment, when people are taking Internet medicine to the next level

I wouldn't like to own stock options in Neuraltus if this works...

Not to speak of working in ALSTDI and for ever having to live with the shame of refusing to lend a hand to PALS in need.

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Don't just ask what scientists can do to speed up the solution for ALS or when they will do it, instead ask yourself what you can do right now to solve ALS asap.

Louis,
Congratulations. Is your nurse friend available for transatlantic IVs?

John

Wow. You are very impressive.... and sound like a lot of fun, I might add. Your wife is lucky to have such a partner. I will be thinking of you both and checking in. Much respect. Eliz.

Ron,

My mistake, sorry. I meant to write .15 mg/kg per day, not 15 mg. For me, I figured this comes to roughly about 1 ml of the 5% solution per day. I add it to a 500 ml bag of saline solution and take about half in the morning and half in the evening. Maybe I calculated it wrong and maybe I'm taking too much of this poison into my veins but, hey, I'm still alive. I just had another infusion 1/2 hour ago and I'm fine.

Thanks to everyone for the encouragement. My wife thinks I'm insane but she knows I love her. Trisha, my nurse friend, is a riot. She asked me what I wanted for my last meal and I said Sushi with lots of Sake mixed with a little chlorite for taste. We both laughed.

Louis

PS. I hope nobody was copying what I wrote earlier. Maybe one of the side effects is that it makes you stupid? LOL. I recommend that nobody, especially PALS, do this at home until I'm done with the experiment.

Tom, that can't be right either. I take two table spoons a day, and each table spoon is about .25 per tablespoon. Two is about 54 ml / kg for a 160 pound person. I use 17 ml SC. One ml can't be 0.71 .not in 500 ml of saline.

Wow. How did I get it so wrong? Too much weed, I know. LOL. Seriously, I did not plan to take that much per day. My goal was only .15 mg/kg per day. I weigh only about 75 kg. Which means I am actually taking 50/75 = .66 mg/kg per day. To be true to my original goal, I should really be taking 11.25 mg of sodium chlorite per day:

11.25/75 = 0.15 mg/kg

This comes to only 0.225 ml of the 5% solution per day. Oh, well.


If it's true that fools rush in, I am indeed a damn fool.

Hahaha. Well, Tom. I disagree with the NP001 dosing. I believe that PALS should maintain a very low but continuous level of sodium chlorite in the blood stream at all times. Using a high dosage between relatively long rest periods is counterproductive, in my opinion, if only because of the yo-yo effect. I believe it may even be harmful in the long run. This is why I chose an initial target of .15 mg/kg. I think the body can tolerate such a low dose for a long time. I don't think a therapeutic dosage should be much higher.

That being said, I am going to stick to 1 ml per day for my experiment. This will be an even more convincing safety test for my purposes. But then again, I may just be a dead man walking, as my nurse friend told me. LOL.

Louis

Hello all,

I know I'm going to get shot down by saying this, but I feel that this is not the way to go. I can't possibly put myself in your shoes, and heavens knows, were I to be in your position I may also follow this route. This has extremely important ramifications for drug development down the track. We all want to hear how trials etc are going, but if we jump in and take those results and use them in such a manner, I can only see more closed research in the future which I don't think will be beneficial.

What happens should we hear about negative consequences following DIY IVSC? Is the nurse inserting the IV going to take responsibility for ensuring dosage, sterility etc.

Mary

Mary

In the UK we have about 600 people a year die from MND, in the US 6 times as many. In the world 10 s of thousands. This disease has eluded science for 150 years and what must be millions of lives. The ongoing NP001 tial shows some success against this disease. The active ingredient is believed to be sodium chlorite. DIY trials are showing some improvements and slowed progression. These have been going on for some time now, almost 5 months?
People involved are showing the yoyo effect on and off dosing. Nobody knows if the sodium chlorite is safe in the body or not. So far only 2 people seem to be reporting kidney problems from approximately 80 people involved in the trial.
Tom ( Silver Fox) has tried getting testing facilities without success, we have asked ALSTDI to become involved.
It is probable that NP001 will not be available for at least 1 and maybe more years.
Given the above how would you suggest this trial proceed?

On the question of research it seems tragic that this exists in the hands of pharmaceutical companies. Given that the properties of sodium chlorite were apparently known to exist in 2004/5 and now, 7 or 8 years on, clinical trials are taking place how has this "open research" served the 10s of thousands of people who have died in the meantime?
Louis is a man who has a wife in the later stages of this illness who has just come through repiratory failure. He is frustrated by the tantalising success which the OSC trial dangles before us and would like to improve on what is happening.
Perfectly understandable.

John

John wrote:
'Nobody knows if the sodium chlorite is safe in the body or not'.

But the 5 million folk who have used MMS would be able to provide a few clues regarding efficacy (and safety)?