In the
spring of 2015, Kevin Gosnell was diagnosed with ALS. His world turned upside
down.
A few short
months later, Kevin visited the ALS Therapy Development Institute, not just to
learn about the mission and work of the organization, but to share with us his
vision of bringing key players in the ALS space together to find a treatment
for ALS in four years or less.
Such a
partnership had never existed.
"Solutions
to complex problems are solved through collaboration of great minds. I applaud ALS.net and
the other participants and look forward to faster successful results from ALS ONE,"
said José Cofiño, a person with ALS and National
ALS.net Ambassador, upon hearing of the new research partnership entered into by the ALS.net funded ALS Therapy Development Institute.
Welcome to
ALS ONE, a partnership between the ALS Therapy Development Institute,
Massachusetts General Hospital/Harvard Medical School and the University of
Massachusetts Medical School. The partnership is focused on one goal: identify
a treatment for ALS. ALS ONE is led by Dr. Robert Brown (UMass), Dr. Merit
Cudkowicz (MGH) and Dr. Steve Perrin (ALS Therapy Development Institute).
Together, this team has identified the strongest therapeutic opportunities in
ALS and are working together as partners to expedite progress toward a
treatment, including the sharing of ideas and division of responsibility to
advance research projects forward. The ALS ONE model is also set up to
contribute a percentage of funds to Compassionate Care ALS, and the clinics at
UMass and MGH, to assist people living with the disease until a treatment is
available.
"It is
so inspiring to see that the ALS Therapy Development Institute
continues to be the example of collaboration and transparency in the
ALS research community," added Matt Bellina (USN-Ret), a person with
ALS and National ALS.net Ambassador, after hearing about ALS ONE.
Learn more
about ALS ONE at www.alsone.org or email us at info@als.net.